Portal de Jumilla
www.portaldejumilla.com
The Dravet Syndrome Foundation receives 4,750 euros raised in the eighth edition of the 10 kilometers and 6.1 kilometers test, Ciudad de Jumilla, held on July 20.
This is the total registration of participants and merchandising sold on the day of the race.
The delivery has been made in the press room of the City of Jumilla in the presence of the mayor, Juana Guardiola, the Councilor for Social Policy, José Luis Monreal, Pedro José Jiménez, representing the Athletic Club and Juana María Olivares, mother of the young Jumillano Israel, affected by Dravet syndrome.
As explained, the Dravet Challenge is being fulfilled, which seeks to "give social visibility to Dravet Syndrome, developing the necessary and sufficient conditions to advance in a better understanding of the disease, as well as a significant improvement in the living conditions of its affected and even a cure over the next few years. "
Dravet syndrome, also known as severe childhood epilepsyiamioclonic or polymorphic epilepsy, is a devastating childhood encephalopathy.
Children with Dravet syndrome often have poor development of language and motor skills, hyperactivity and difficulty interacting with other children.
Source: Ayuntamiento de Jumilla
Privacy policy
- Legal notice
- Cookies